New safeguards and public conversation about health and care data proposed
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News story NEW SAFEGUARDS AND PUBLIC CONVERSATION ABOUT HEALTH AND CARE DATA PROPOSED New measures are proposed to strengthen security of health and care information and help people make
informed choices about how their data is used. The recommendations are made to the Secretary of State for Health, Jeremy Hunt. He commissioned the Care Quality Commission (CQC) to review
existing levels of data security across the NHS and asked the National Data Guardian (NDG), Dame Fiona Caldicott, to recommend new data security standards for health and social care and to
develop a new consent/opt-out data sharing model. Both reports found strong commitment among staff and organisations to keep data secure and that the public largely trusts the NHS to do so,
and both have also identified areas where more can be done. The reviews make a number of complementary recommendations to ensure that the drive for improved patient safety and high quality
services is supported by accurate information, available to the right people at the right time, while maintaining respect for confidentiality. Both reports recommend: * leaders of every
organisation should demonstrate clear accountability and responsibility for data security, just as they do for clinical and financial matters * internal and external scrutiny of whether the
new data standards are being implemented The NDG also recommends: * 10 new data security standards to apply to all organisations that hold health or care information – for example,
organisations should use identify and address risks such as default passwords, dormant accounts and unsupported operating systems * a much more extensive dialogue with the public about how
their health and care information is used and the benefits of data sharing. The review underlines that information is essential to support excellent care and for a range of beneficial
purposes such as helping researchers to develop life-saving medicine or regulators to see when things are going wrong promptly. However, there is currently little public awareness of how
information is used * a new opt-out to make it clear to patients how their health and care information can be used and in what circumstances they can opt out of it being shared for purposes
other than their direct care. The NDG Review found that people tend to support their health and care information being used where they can see the benefit, but want to be given a choice
about that * whether people opt out or not, they should be reassured that their health and care information will only ever be used if the law allows and never for marketing or insurance,
unless they consent separately to this See NDG Review of Data Security Consent and Opt-outs The Department of Health has today provisionally accepted the recommendations and confirmed that
there will be a public consultation and further testing of the recommendations put forward by the NDG. National Data Guardian, Dame Fiona Caldicott, said: > My recommendations centre on
trust. Building public trust for the > use of health and care data means giving people confidence that > their private information is kept secure and used in their > interests. >
> Citizens have a right to know how their data is safeguarded. They > should be included in conversations about the potential benefits > that responsible use of their information
can bring. They must be > offered a clear choice about whether they want to allow their > information to be part of this. I would encourage everyone to get > involved in the
consultation about the proposals that I am putting > to government today. David Behan, Chief Executive of the CQC, said: > The ability of NHS organisations to access and share patient
> information is crucial to the delivery of safe, effective care. But > without robust processes, there’s a risk that information may be > compromised, may not be accessible when
it’s needed, or may not be > kept confidential. > > We worked with 60 NHS organisations for this review, and those which > demonstrated good practice on data security shared
common > characteristics – senior leadership who took this issue seriously > and demonstrated ownership and responsibility; staff who were > provided with the right information,
tools, training and support; > and systems and protocols designed around the needs of frontline > staff, reducing the need for them to develop shortcuts in order to > deliver timely
patient care. But too often, not all these elements > were in place. > > CQC has set out 6 recommendations aimed at improving arrangements > for protecting personal data, and
assuring the new standards > proposed by the National Data Guardian. These recommendations focus > on 3 main themes that are fundamental to the secure handling of > data: people,
processes and technology. Ultimately, however, it is > for NHS leaders to demonstrate clear ownership and responsibility > for data security, just as they do for clinical and financial
> management and accountability. See the CQC data security review, Safe data, safe care. SHARE THIS PAGE The following links open in a new tab * Share on Facebook (opens in new tab) *
Share on Twitter (opens in new tab) UPDATES TO THIS PAGE Published 6 July 2016