The kawasaki disease foundation: a parent organization in the united states to promote awareness and education about kawasaki disease


The kawasaki disease foundation: a parent organization in the united states to promote awareness and education about kawasaki disease

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ABSTRACT In October 2000, a parent-based organization to promote awareness of Kawasaki Disease (KD) was formed in Boston, MA. The Kawasaki Disease Foundation is a national non-profit


organization dedicated to (1) increasing awareness to promote early detection and treatment, (2) facilitating family support, and (3) raising funds for research. Some of the


Foundation's current projects include a made-for-television documentary and educational video, appealing to the U.S. Congress to allocate funds to the Centers for Disease Control and


Prevention to create a sentinel hospital surveillance program, managing a nation-wide network of trained support volunteers, and presenting regional educational conferences for families. The


first family conference was the Kawasaki Disease Parent's Educational Symposium in Boston, MA in October 2000. Similar events are being planned for 2002 in Washington, D.C., and


Milwaukee, Wisconsin. In contrast to Japan, where KD is a relatively common illness, parents in the United States perceive a great need to educate both lay and professional audiences about


KD, its treatment, and potential sequelae. For more information, please visit www.kdfoundation.org. ARTICLE PDF AUTHOR INFORMATION AUTHORS AND AFFILIATIONS * Kawasaki Disease Foundation,


Boxford, MA, USA Gregory Chin Authors * Gregory Chin View author publications You can also search for this author inPubMed Google Scholar RIGHTS AND PERMISSIONS Reprints and permissions


ABOUT THIS ARTICLE CITE THIS ARTICLE Chin, G. The Kawasaki Disease Foundation: A Parent Organization in the United States to Promote Awareness and Education about Kawasaki Disease. _Pediatr


Res_ 53, 187 (2003). https://doi.org/10.1203/00006450-200301000-00202 Download citation * Issue Date: 01 January 2003 * DOI: https://doi.org/10.1203/00006450-200301000-00202 SHARE THIS


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